Influencer with Rare Disorder, Who Doctors Said Would Only Live to 12, Dies at Age 28 | Influence…


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Michiel Vandeweert, Belgian Creator Who Shared Life With Rare Genetic Disorder, Dies at 28

Across Instagram, YouTube, and Twitch, Vandeweert built a combined following of more than 90,000 people, blending gaming content with candid glimpses into life with progeria.

At age 15, he published a memoir titled "Ik Ben Michiel" ("I Am Michael"), detailing how he confronted a shortened life expectancy. His story reached a wider audience this year through the documentary "How To Be Alive: Amber and Michiel," which followed him and his 20-year-old sister, Amber—who also has progeria—as a film crew documented months of their daily lives.

Vandeweert was also a devoted supporter of Belgian soccer club KRC Genk, which honored him on social media Tuesday.

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